A global network helping to treat frontotemporal dementia (FTD)
We are the FTD Prevention Initiative (FPI) – a global community in the fight against genetic FTD. The FPI consists of researchers, families with FTD, charities, and patient engagement/advocacy groups who are all party to this global effort of promoting clinical trials and finding therapeutics for this disease.
5,000+
participants eager to help solve FTD
250+
researchers studying FTD
10
global cohorts ready to help fight FTD
Learn About Our Global Initiative
Researchers
We have created a minimum shared dataset that includes harmonized clinical data from global f-FTLD cohorts. Please click below if you would like to learn more about accessing our data.
Patients and Families
We are working with individuals and families with FTD-causing mutations, including, but not limited to: microtubule associated protein tau (MAPT), progranulin (GRN), and chromosome 9 open reading frame 72 (C9orf72).